I settle in the warm, silky water of my tub, my head nestled in its smooth curve that hugs my back. I close my eyes and utter a silent, heartfelt prayer. (I have developed the practice of saying a prayer in my heart and soul whenever gratitude hits me, those moments when I could clearly see the difference between misery and comfort. And even contentment. I am quick to grab those moments and hold them close for just a while until I release them into the air with my gratitude and prayer of thanks).
With my eyes closed and my flesh caressed by magnolia-scented water laced with lavender salts, I say my thanksgiving to God. My heart overflows. I don’t think about the fact that Felix put me in the tub and scrubbed me with a stiff loofah earlier and that he will come back to rinse me, wrap me in my fluffy robe, then carry me back to the waiting wheelchair (and always with a thump!), and then the half-hour of rest in bed until I could sit up again to apply lotion and change into fresh clothes.
I don’t think about those things, the things that others do for me because I am unable to do them myself. I don’t think about the fact that I can’t walk and go out and many other things that I cannot do, not to mention the physical suffering and difficulties. I just want to dwell in this moment now that I am in this tub and my skin is silky and all is well in my revised definition of well.
For I had known months of not being able to bathe. So, these here are the fringes of bliss. If not heaven itself.
How do you live life in the hard? It’s not always been like this for me for the past more than 13 years of being ill. In the earlier years when one does her best to hold on to the old life of good health and complete strength while facing the stark reality that things may never go back to where they were before, or worse, if it all ends up to an untimely death – it was pure horror. That fear, that uncertainty – they make a body and soul tremble to the core.
Those early years for me could be defined by one word: desperation. When you’re desperate, your desperation will dictate the life you are to live. You don’t even plan it. There’s no time for careful planning. There are only bursts of panic and a kind of faith you will never find in a sunny, rose-strewn pathway. That kind of faith is only birthed in the shadow of the valley of death. A faith that has a life of its own, a living, breathing, moving faith. A faith that can move mountains in its desperation.
In those times, you will not concern yourself with the question on how you live your life, because first, you need to survive. Many a time in my whole ailing life had I struggled only to survive.
Then there were the years of aridness, of being out of desperation but being stuck in painful waiting. When your days are marked by sighing, wishing, longing, waiting. When you still can’t find your way to thanksgiving for the constant heaviness of soul. It is a dry, fruitless land. A tundra.
During my tundra months, even the dandelions were envied. They proliferate the vacant lot beside our house. Even with the cruel intensity of the summer sun, they stand and not a single, tiny petal or leaf shows weakness. They grow, they exist without a care. I had seriously wished I were a dandelion.
When you’re in that barren place of waiting, where uncertainty is the prevailing climate of the land more than great expectations, how you live life is dictated by your surroundings. Faith again plays an important role, but so does hope. Steadfast faith and tenacious hope. Those are your loyal companions, friends that stick closer than a brother.
The year 2015 was that for me (well, one of those years). Faith had me clinging to the powerful promises of the psalms and hope drove me to edit photos everyday with a chosen verse from a psalm and shared them on FB. One hundred and fifty psalms in one hundred fifty days. That’s almost covered half of the year, the same amount of time of living in faith and hope and not knowing the other offerings of life, like enjoyment and happiness and dreaming. In fact, I had stopped writing on my blog during those months. I only posted on IG, photos of my tea or the pastry I was able to eat, with a huge pink hibiscus in the background plucked from our garden. Or a book I was trying to read. Or my Tim – from school, sleeping beside me, eating, smiling.
Those photos I shared were but snippets of life. But still, they were signs of life. Of faith. Of hope.
The hibiscus tree with those huge pink flowers was directly in my line of vision when I looked out of the French doors through the patio to the garden beyond. When physical weakness and discomforts and sadness and the desolation of waiting uncertainly tried to steal my hope and semblance of peace, I looked at the hibiscus tree boasting of pink flowers the size of a plate. I always found hope in it. The flowers opening wide and smiling to the world were a sign of life for me.
Just as I had found hope at that piece of blue between the roofs many years ago, when I had sat in our garage all day and bemoaned my hapless state. Praying and waiting for healing had felt like digging on hard concrete and barely making a scratch. I had looked at that piece of blue wedged between our garage roof and that of the neighbor’s, a very bright cerulean in the mid-afternoon sun, and hope had come rushing back with a fresh vigor.
As long as I can see that piece of blue up there, where my Savior and Healer lives, where all life flows — I will believe! I will have hope!
I had stared up at that framed blue sky and repeated those affirmations before I was wheeled back to my room to rest.
In the hard, you live your life as the circumstances present themselves, but always with faith and hope. Faith and hope are the threads that hold everything together. When both are lost, everything unravels. When everything unravels, it would be like trying to hold water in your fists.
Felix wheels me back to our bedroom and I cocoon myself in my thick bathrobe as I settle in bed to rest after my bath. A glimpse of the elusive good life flashes in front of me and I get it: living life in the hard is intentionally pursuing and doing the God things and collecting all the gifts, big and small, special or ordinary, neat or messy, because they all add up at the end of the day.
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